Sunday, August 27, 2006

CBR IS A PROCESS OF SOCIAL DEVELOPMENT

Community Based Rehabilitation, as I understand it, is a process of involvement of the local people in the development activities of that community by their own resources and initiatives. From our last 11 years experience in the disability field, we have found that the presence of the disabled persons even those people who are living in the community, are being ignored from all functions where their consent is most important.

Before CBR approach, especially I cannot find any approach where participation of all people has been ensured in the daily activities for their own development from the same community. What is happening in our society in the name of the development is imposition of development programs on the people of the community. As a result, people do not perceive these programs as their own.

On the other hand, historically, disabled people were left out from all types of developmental activities. As a result, I find it extremely difficult to consider these activities as total development of the human society. It may be termed as partial development of the community and for the human society.

Now a days, I think that the designers, planners and thinkers of CBR approach, realizes the lacking of participation from all categories of people, specially disabled persons those who were totally absent from the mainstream of societal life. As a result, they are giving prime attention in involving the disabled persons and are addressing uses such as, how to develop the quality of PwDs’ present situation and how to bring them in the mainstream society. To me CBR is an excellent opportunity for the development practitioners to achieve quick success through creating space and scope for the participation of the disable people. This is also an opportunity for the disabled persons to show their potentialities in the society through participating in the development activities. However, the major challenge is how INITIATOR OR FACILITATOR OF THE PROGRAMME WILL RUN THIS CONCEPT, since the entire implementation blue print lies within his control.

To me CBR is not simply a Program approach, rather it is more a political and philosophical approach for the development of Community. The concept has given the assurance of human rights that will be possible to avail by the all classes of the people in a community. To implement this broad approach, it is critical that the Initiators or Facilitators of CBR are well trained on the details of the methodology of the CBR program. Since the approach provides a means to the community people to understand their own problems, qualities, opportunities and equal rights to participate in the development activities of the community where they live.

Considering the above idea, we fee that in order to achieve meaningful result from the CBR as a process of social development, we need to include non-disabled persons in this process as well because in the community disabled people does not live alone. Another thing that we have observed in the process the process is the building-up of "self realization" among the people We have wrongly assumed that this is probably possible simply through education means. But a truly functional education to make one understand and realize ones own quality, capability, ability, and resources does not exist in the present educational format. We have observed that without this “self-realization” people easily get frustrated since they neither know how they can contribute to the process nor they know how the process would contribute to their well being. This seemingly unimportant element in the entire process is so significantly and critical that it may destroy the whole efforts. We have tried to see the impact of our work in a small scale in a remote area of Southern Bangladesh — Chakaria, in Cox's Bazaar district

While working, we have found that they have no role anywhere, even in the family where they live. They are helpless to the extreme point. Their presence in the social life is noticeably missing. These people are being treated as burden in the middle income family and in the poor classes, they are being considering as an income generating source, on the other hand those who are living in the upper classes they consider them as an additional responsibility. But in one point they all are equal, that is they have no acceptability in the society, socially and culturally. In the society, to be accepted anything in anywhere it needs involvement. In the case of disability, it is totally nil. At present the mentality of the people are that they always expect return from others. The attitudes of majority of the families with disabled persons are, they try to hide the disable persons from others. These social incidences of disabilities do not require much description because it is well known to all.

We are running CBR program through the formation of groups of vulnerable people in Chakaria since 1995. Initially we focused only on the disabled people to form the groups. After two year the community appealed that, the non-disabled people should also be included in the groups. So from 1997, we have opened the door of the groups for all members of the community irrespective of sex, religion, economic status to become members of CBR group. The only condition is that the group member must be from the family of a disabled person. If there is no disabled person in the family then s/he must be closely related with any disabled people in the community. So far, 115 groups have been formed in six unions of Chakaria. In majority of the groups, the PwDs are providing the leadership.

Although initially we tried to form groups of 20 members with 33% participation of female beneficiaries and 20% from able-bodied community people, the female participation could not be achieved due to social stigma. Out of 192 disabled members in 115 groups, females' representation is only 90 and the able-bodied people are family-heads of disabled children.

The groups arrange regular meeting to discuss problems relating to their family and community and try to find possible solutions. They practice this to develop their self- confidence in decision making to solve their own and collective problems. They are now trying to locate local resources for possible use through arranging these meeting in presence of local elite, local government and non- government officials.


The most critical problems that were identified by the groups are:
Education (literacy rate is almost nil among the person with disability)
Economic condition (they belong to the low income group and most of them were burden on the family or are engaged on begging)
Socially unacceptable (none considers their existence in the community, social facility or infrastructure are not accessible to the PwDs, and Most of all none in the community thinks for their development.)

INDICATOR OF THE SOCIAL DEVELOPMENT: SARPV initiated the CBR program considering that it is a tool of social development and through this process, the community people could be involved and integrated. Since the issues of the disabled people are not going to be addressed by any community development program, SARPV formed the groups prioritizing the most neglected persons in the community. Although a number of program activities are run by various community development organizations like Education, Skill Training, Saving and Credit, Ensuring land for landless, but these programs do not include the Person with Disability.

SARPV was shocked to identify this severe lacking in the development programs and latter it initiated its own program specifically focused for the Person with Disability. The program included Education, Skill Training, Home counseling Savings and Credit, Networking, Group management, advocacy etc. SARPV also facilitated the activities for taking their problems to the development stakeholders and take proactive initiatives for solving the problem through the help of the community or others.

SIGNNIFICANCE OF CBR:

The CBR program at Chakaria encouraged the PwDs to place them in the mainstream social life. During this period for the first time in the history of Chakoria, 5 PwDs have succeeded the Secondary School Certificate examination and three of them have enrolled in the Higher Secondary Examination. This was a significant dividend of CBR program that the community people saw in concrete form. The community realized that given the opportunity PwDs can also become a dignified and contributory member of the society. Through this integration, it has been proved that despite vulnerability and socio-economic condition, the community is willing to accept their fellow member if they have qualities. The central question here is not disability but accessibility and equal opportunity.

Second, CBR ensured the assessment of the various weaknesses and strengths of the community. Through this process the community people realized the importance of the services that either do not exist in the community or their quality of the services are extremely low, such as health-nutrition classes, literacy campaign for the groups. The process actually increased the awareness among these people for possible group-approach to identify their problems, locate available facilities and raise their voice for more equal participation and opportunity.

Thirdly, It ensures to create an environment of job opportunity for the vulnerable groups in the community. One of the important interventions of the SARPV in the community is to creating job opportunities for the PwDs so that they can earn money. At present more than 40 persons are involved in small scale business and they are economically self-sustained. Through this economical strength, they have a place in the community, which were only a wishful dream before. Now they feel that the community respects them and looks at them in different eyes.

Fourth, This mechanism provided a network among the community and treats each other as partners in community development. All the CBR groups are well noticed by the local government and thana administration. These officials if find anything they can do for the group, they extend their assistance even without any request. The Chakaria CBR program proved that maintaining a network with all the stakeholders of the community is therefore an essential element of CBR

Fifth, CBR provided the opportunity to empower the vulnerable groups. The person with disability does not feel shy to go outside and interact with people or participate in social events. The parents are also coming forward to talk about their problem and how to overcome their problem. Here we observed that home counseling is an essential element CBR that greatly helps to overcome social barriers.

Sixth, CBR created a social harmony through an environment for respect for each other. We have observed that social leaders and stakeholders of the community come forward to listen the voices of the group members and are helpful solving problems. What was almost absurd before 5 years, as it was the common notion that the vulnerable people can only ask for help, they cannot contribute anything for the society. But now they are contributing section of the community.

Seventh, CBR protected human rights of the vulnerable groups. The community people and the development organizations that have been working with vulnerable groups and poor people have not considered disabled people from socioeconomic vulnerability and cultural lagging. The NGO's working with woman, children, and poor hardly considers disabled persons as one of their beneficiaries. It seems that the PwDs are not human beings and have no right to social services. The Chakaria CBR groups demonstrated how they created the linkages with other organizations such as drinking water and sanitation: Before the CBR program, Person with Disability were not allowed to join for such facilities of the GOs and NGOs what would have provided to the other vulnerable groups. But after having the CBR program, gradually all this support are going to their hand and they are even getting responsibilities to take care and maintain those facilities Thus an alternative social integration process has been initiated.

Eight CBR also play the role of the advocacy to involvement of the local government to the development of the Persons with Disability is also has a great significance. The groups arrange monthly meeting with the local representatives of the community (Union Parishad). They group members express their problems and simultaneously provides suggestion. This process has start from last one year and by this time Union Parishad already has declared that they will spent 0.5% form their total development budget for the disable people of that community with their consent in Chakoria thana Fashiakhali union only, it proves that CBR has an effective role to change in the policy too.

Ninth CBR works for prevention and to reduce the cause of disability: the approach to address problems associated with disability addressed by the community. It encompasses the causes behind the problems. The problems are becoming acute not only for attitudes of general people barring participation and access to available resources to disabled persons, but for lack of preventive measured to lessen the severity of disability and control disability affecting factors as well. Here CBR facilitates to minimize the misconception about disability and non-confidence on disabled people by the general people. It is done gradually through close and frequent interaction between disabled people and the general community. This in fact builds the steps towards general people's conceptualization of disability from more human perspective. On the other hand making community people take role in the prevention minimizes future threat of more acuteness of the problems.

Tenth CBR is a process to ensure the democracy of sharing the responsibility to our disabled population with the greater mass where the latter need to re-identify their resources to fit in with disability redeeming measured. The sharing of responsibility is done through passing the minor details of a particular problem to the concerned people and making the use of these details ensured in day-to-day activities. Here the initiator or facilitator would only give input to promote general people's enthusiastic involvement in coming forward to solve the identified problems. In fact the people in their part identify the problems their way and every time attempts indigenous efforts. Again the facilitator here needs to incorporate the efforts with available knowledge.


Eleventh CBR is a tool of ensuring Equal rights of the vulnerable groups of the community. My experience, especially during the CBR program, is rehabilitation of the handicapped section of the community is never possible until and unless the social attitude to the handicapped changes. The present attitude of the society to the handicapped is one of doing a favor and not thinking “equal". This thinking originates from the family in which a disabled child is born. I therefore emphasize criticalness of the point that rehabilitation of the handicapped must start from the house.

Though there is no formula or blueprint for starting point of rehabilitation Program, it could be started from family or close family. How it should be started depends on various facts: the number and nature of the handicapped, the interest and talents of parents, the resources available.

We also have to thinking about how we will be able to motivate others in order to get the assistance (voluntary, if possible) from other rehabilitation professionals, schoolteacher, and other rehabilitation professionals, schoolteachers, local government, local administration unit and others with skills that could be involved with the whole process.

I believe that a person becomes handicapped only when s/he is mentally weak. A child is made mentally weak from home and usually by the family members. When a disabled child first learns to think she learns about "favor /mercy " but not equal rights. The child’s movements, participation in any functions of their family is severely restricted. So, if rehabilitation is going to reach the disabled, I think rehabilitation of the mentality of the Parents of the disabled is first necessary. Parents of the disabled should learn how they would work "with" the disabled person so that the person can think themselves equal to others.

To create this environment at home, we should think how home based rehabilitation services could be established. If this program approach could be launched, I think that the present social attitude to the disabled would probably change significantly.

Twelfth CBR works as a tool of Poverty alleviation. The role of the schoolteacher is also critical in any rehabilitation activity. A school teacher can help a disabled child to adjust mentally. To adjust to the present situation guidelines should be developed in a proper way for the intellectual and emotional development of PwD and giving then the opportunity to participate in all functions with others. Like the role of the media such as Radio, Television, Newspaper is important in the rehabilitation activities of the handicapped disabled. They can broadcast different types of programs on disability which the disabled and their parents can get the opportunity to think and realize that the disabled are not a burden and are not cursed by society. They may turn into a social and economical strength if they receive the proper environment and opportunities to build them up in the proper way.

CONCLUSION:

So I think home based rehabilitation Program should be launched immediately and with disclosure of the parents. To create this Program a sound structure is needed perhaps with a referral chain, starting with rehabilitation at home, with guidance from a center run by locally trained workers. This center should have a close link with the nearest school orthopedic hospital, physiotherapy center, local government and local administration unit and other necessary institutions.

Finally, before starting the program in the community we should emphasize on the available human resources who are there and how we can utilize them in that program. This will increase local ownership of the program and increase sustainability. Now days we provide little attention to design programs involving the community people neither there is any approach to do so. What we are used to development program is on the basis of top down process what government; Donor and International agencies immediately should redesigned. Program should be chalked out on the demand of the people of that community.

We must have to think why community people will support this program. How this program will sustain and why they will feel ownership. The donor should also evaluate why they would support this program, how effective and efficient the program is?. Usually the donors are more interested to see if the program involves disabled People or not. This attitude is actually contributing to the infectiveness of CBR program. CBR is program approach should be meant for integration of the community and not limited to the involvement of PwDs only

As the news of the Program travels from family to family and village to village and place to place it is expected that the impact could result on changing the social attitude to handicapped of the family, the society and the nation at large. Thus I strongly believe that if any body comes forward to run the CBR program it will ensure the Process of Social Development.

Shahidul Haque (Ashoka fellow)
Founder General Secretary
SARPV-Bangladesh
Tel: 880-2- 811 9 2 71
: 880-2- 912 4 522
Fax: 880-2- 811 9 774
Email: shaque@bd.drik.net, sarpv@bangla.net

Monday, July 03, 2006

International Conference on rickets
Dhaka, Bangladesh
.






Organized by:
Social Assistance and Rehabilitation for Physically Vulnerable (SARPV)
of Bangladesh, Aide Medicale et Development (AMD) ,and Kinesitherapeutes Du Monde (KDM).



1. Executive Summery:
A day long International Conference on Rickets was jointly organized by Social Assistance and Rehabilitation for Physically Vulnerable (SARPV) of Bangladesh, Aide Medical et Development (AMD), a French medical association and Kinesitherapeutes Du Monde, a physiotherapists’ association of the world in France, based in Dhaka, Bangladesh at Bangladesh Institute of Administration & Management (BIAM) Auditorium, on 26 January, 2006. Around 80 national, governmental and non-governmental delegates and observers attended the Conference from countries in Asian, African, French and American organizations.
The primary aim of the conference was to provide an overview of present situation and treatment of Rickets in Bangladesh and rest of world at a glance. However it was a good forum for physician, researcher & specialist of participating countries to build their network and exchange views, along with international effect on preventing rickets. They share their visions, experiences and strategies on Ricket disease and to coordinate their actions for developing preventive measure(s) in future. At the end of the daylong conference SARVP, and its chief executive, Shahidul Haque has been selected to be the Champion representative to carry out further research and fieldwork between Cox’s Bazaar and its surrounding districts in Bangladesh.

2. The Welcome Session:

The conference began with the welcome session in the morning. Shahidul Haque, chief executive of SARPV-Bangladesh, invited the Vice-chancellor of Bangabandhu Sheikh Mujib Medical University (BSMMU) and Bangladesh Medical Association (BMA) President Prof. M. A. Hadi, to take his chair as chief guest and Jacques Andre Constilhes, French ambassador in Dhaka, as special guest in the welcome session. Prof Hadi pointed out that the prevalence of rickets is another health issue to be addressed seriously. He assured that the BMA would provide necessary cooperation in this regard. The French Ambassador hoped that the collaboration between the surgeons, physicians and biologists of the participating countries would help to improve the techniques of prevention and treatments of the disease.

3. Presentation by Countries and Organizations

3.a. First Session: What is Rickets?

Speakers from different international organizations and countries took the floor to share their countries’ and organizations’ experiences and challenges on the theme of the Conference, particularly taking examples of the achievements made and obstacles encountered. Following the inaugural, the first session entitled “What is Rickets?” was started & chaired by C. Meisner.

“Rickets around the world: history, symptom, etiology” was the first presentation by P. Fischer and P. Tebben of the first sub session. In his presentation P. Tebben focused on the point that rickets is a disease resulting from inadequate bone mineralization in growing children. Rickets results from inadequate amounts of calcium and/or phosphorus delivery to sites of active bone formation. He also mentioned that 59 countries have reported cases of nutritional rickets since 1985 from the World Perspective. Moreover rickets is not limited to regions with limited sunlight. His study revealed that calcium deficiency leading to rickets is becoming increasingly apparent in Nigeria, South Africa, North America, Bangladesh and India.

The second presentation entitled “Calcium Deficiency Rickets in Africa: history, symptom, etiology” jointly prepared by John M. Pettifor and Tom Thatcher and was presented by J. Pettifor in the session. In their presentation John M. Pettifor of Department of Pediatrics, University of the Witwatersrand, Johannesburg, South Africa and Tom Thatcher of Department of Family Practice, Jos University Teaching Hospital, Nigeria explicitly mentioned about the reality of the disease in both the countries. The presentation focused on dietary calcium deficiency in South Africa and Nigeria.

Shahidul Haque, chief executive of SARPV, introduced the last sub session of first session. His paper entitled, “The history of the rickets in Bangladesh (Knowledge and doubt)” depicted the reality regarding the disease in Bangladesh. Rickets was discovered first at Chakaria of Cox's Bazaar in 1991, he said, adding that the disease at present is not a problem of coastal belt alone but also the entire country is now at risk as rickets cases have been found in all the six divisions i.e. Chittagong, Syllhet, Dhaka, Rajshahi, Khulna and Barisal. A rapid assessment done by Dr. Cimma in 1995 from Chittagong to Moheskhali found that 4.5% of the children had features of clinical Rickets. Shahidul pointed out that there is however no nationwide data on rickets. On prevention and cure, he said rickets is preventable as well as curable if identified at the beginning.

The five common concerns and challenges were explicitly recommended in his presentations to make a permanent solution to free this country from any further rickets’ epidemics and to save our future generations. J. P. Cimma presented the second part of the topic History of Rickets in Bangladesh in two different presentations, with the special focus on prevalence and symptoms. The presentation of Cimma also discussed the five common concerns, that were raised by Shahidul Haque, chief executive of SARPV.

J. Arnaud, presented 'Rickets in Bangladesh Causes and risk factors', the last paper of the session. J Arnaud, the Nutritional Biochemist of University Hospital, Grenoble, France explicitly explained the risk factors of the disease from field studies in Chakaria, Bangladesh. In her presentation she focused on active rickets and its Clinical and Radiographic signs, Background of Nutrition and Human Health relationships and then she came up with the reality of field as a case study.

There was a provision for quick questions and response from the presenter after each presentation.


3.b. Second Session: How to treat Rickets?

After the tea break in morning the first part of the second session entitled “How to treat Rickets?” began jointly chaired by S. Kelly and J. P. Cimma. The first presentation “Treatments of Rickets around the world” made by P. Fischer and P. Tebben presented P. Tebben. In their presentation they mentioned that they did a survey among the children of 1-15 years old of 30 villages in Bangladesh and the study revealed that 8.7% of them had clinical findings of rickets. In the summary of this presentation the researcher suggested about identifying active rickets that every one should have to understand the cause of rickets, as there are different causes of rickets even within the same region from the aspect of age, dietary habits, and social practices.

In the second presentation titled “Calcium Deficiency Rickets in Africa: Medical and Nutritional Treatment” John M. Pettifor and Tom Thatcher presented information of a treatment study among the children of Africa. The last presentation of this part of the session entitled “Treatment in Bangladesh” was divided into seven (7) presentations.
Those were:

The Chakaria Disable Center of Chakaria by M. Kazi ,
The graduate treatment and the CRG by T. Caviari - from France,
Nutritional Treatment by Morshed, - from Chakaria
A nutritional Study by J. Arnaud, - from Chakaria
Medical Treatment by Suraya, - from Chakaria
Brace Treatment by Ershad and
Surgical treatment by T. Caviari., , - from Chakaria

According to a question from participants of session Shahidul Haque of SARPV explained the reality of Bangladesh is that children are at risk and the threat of this disease is increasing in every district. The only way out is to come up with the nutritional aid and follow up program. Mentioning our culture and eating behavior of our children, as they don’t think and like vegetables as a rich food, he noticed that iodized salt is a matter of concern in Bangladesh and calcium enriched vegetables should be a concern like this too. Therefore he recommended for a community based educational approach to fight the disease.

The second part the session “How to treat Rickets?” was jointly chaired by Shahidul Haque and J. Arnaud. This part of the session consisted in three (3) other major topics of presentations. Prevention of Rickets around the world by P. Fischer and P. Tebben and Prevention of Calcium Deficiency Rickets in Nigeria by Pettifor, T. Thatcher were the first two paper of this part. And the Bangladesh part was explicitly presented in three (3) presentations.

This part was entitled “Prevention in Bangladesh” and presentations were as follows: Trials for prevention using agriculture, Calcium enriched food, Calcium tablets by C. Meisner.
Awareness raising on rickets through drama on changing food system by C. Meisner and Shahidul Haque. Prevention done by the Chakaria Disable Center's team by M. Kazi.


4. Round Table and findings:

After the lunch a round table discussion were organized into 3 teams according to preference on issues of Prevalence follows up of the epidemic Financial support for Rickets treatment
Individual and collective prevention

Group – 1 came up with the findings below on the topic of

Prevalence Follow Up of the Epidemic- Leaded by Dr. Phil Fisher from Mayo Clinic-USA

They agree that:
1. Rickets exists in Bangladesh.
2. Rickets-like leg deformities exist in Bangladesh.
3. Rickets seems more common in southeastern Bangladesh than elsewhere in the country.
4. Rickets occurs widely across Bangladesh.

They need to know more.
Prevalence surveys could be useful to:
1. determine the extent of the problem >> to mobilize resources
2. determine who is at risk and what the nature of the problem is >> to focus interventions
3. Compare with the with the past >> evaluate the effect of previous interventions

Their proposal, to meet the priority need, is to:
Do a prevalence survey
· sample Cox’s Bazaar district
· determine the prevalence of rickets-like leg deformities (at all ages)
· for individuals aged 1-16 years with deformities
· Get x-ray to see if active rickets exists
· Test alkaline phosphates to see if active rickets exists
· Determine history of the time of onset of findings
· in those with active rickets test calcium, phosphorous, 25 vitamin D, 1, 25 diOH vitamin D, PTH


NEED:
A “champion” to make sure this prevalence survey is done
An organization to do the survey




Group – 2, came up with the findings below on the topic of

Financial support for rickets treatment - Leaded By Dr. Caviari Thierry From France

Fund raising
local government
possible donors / NGOs
local contributions/ resources
national lottery
concert or exhibition
include corporate houses
marketing and communication team
Media
Pharmaceutical company

Group-3 came up with the findings below on the topic of

Individual & Collective Prevention- Leaded by Dr. Craig Meisner Agronomist

Overall Points
ID of Target Area
Communication w/ community
Awareness Raising
Strategies
Implementation Approaches

a. ID of Target Areas
Map of the area
Assessment/Map of the Resources
Assessment/Map of the Institutions & NGOs, GO ,etc
Networking with the Resources and Institutions
May need further research, surveys to better find target areas
Case Studies

b. Communication w/ community
Affected Children and their families
Males & Females specifically of the family
Community Leaders
Religious Leaders
Teachers
Social Workers
NGOs
Local Government officials (including health)

c. Awareness Raising

National Consultative Workshop/Seminar/Campaign for policy makers w/ research papers showing evidence, creating awareness, round table discussions,
Behavior, Change, Communication (BCC or IEC)
Dramas, posters, film shows, billboards, roll playing, advocacy, Peer Advocate Educator
Advocacy with and by religious leaders
Teachers, students, School Management Committees, PTA
Family visits/consultations
Follow AIDS awareness strategies
Counseling through Health Service during antenatal postnatal

Thursday, May 18, 2006

HIV Aids and Disabilty

Regarding HIV aids and disability there was long discussion was going on but it was very difficult to make clear how it is related. Thanks to SHIA to arrange such a resource person who is well aware about on HIV and can take it in different ways.
From disability aspect if we see HIV then we have to consider the following :
1. Physically threatings
2. Emotional aspects
3. Social negative attitude towards him
4. Sexual restriciton life
Then it will be easy to relate the disability and HIV Aids. Now I can see how closely it is linked with the disability and human rights too.

So all should raise the voice that it is disease and can controll only needs to know that who is affecting with this disease and let encourage to all so that every one ecept this like a disease not something else like hepatities C+ is also dangerous so why HIV AIDs affected people will be looked in different ways. It needs more positive campaign.

Tuesday, May 16, 2006

Mainstreaming, Biwako .FM, Mellinium Development Goal and PRSP

Recently we all are talking about the mainstreaming of the disablity issue but none we are talking about what are the problems we are facing to initiate the mainstreaming process in different sector. If mainstreaming is the ultimate goal and then what is the first step of the mainstreaming is that integrating then inclusion and finally result will comeout through the mainstreaming process.This we are not tallking about.
What I feel we need to come in concensus on this issue what we mean by mainstreaming otherwise it will be confusion to the different groups and people in different ways.So it is very important issue to come in a particular decision what does mainstream mean.

Whenever we disabled people seat to discuss then we start with the Biawko development frame work as there 7 points on disability has been mentioned very clearly but when we go to share with this other stake holders of the state as if they do not know anything aboput this as they are familier with the Mellinium Development Goal and then we fall in confusion. So to overcome from this situation series of discussion is till needed from both nationally and internartionally

Regarding PRSP though it is the tool of eradicate the poverty but who is poor there is no indicator that disabled people is also in the same group. When we find the groups then we needs to start to dialogue with the authority to discuss this issue.So it is not the possible all the time to start lately here one lobbyist group should be to check before if any convention is developed then to check before whether it is addressing the all vulnearble groups or not.

I like the linkls: http:// Disability and PRSPs - Charlotte McClain-Nhlapo

Sunday, May 14, 2006

Tourism and Disability

Disability and tourism is a unique session to learn and to educate the others.It is one good mobile educaton team for the disability sensitization program but it is not for sweden and if it would be in developing countries a lot of people would learn a lot and also think about who are doing this program. Respect and participation would come from the community and from the civil society.

Todays experience is good for me to learn about disability and tourisim.

Shahidul Haque on 14th May.2006

Friday, May 12, 2006

lobbyibng

For the equal rights and opportunities of the disabled people and other marginalised groups Lobbying is the essential part of the life to get thinings in favor and to enusre their rights. Everyone we do the lobby either informally or formally. From family level to state level where ever there is something going beyond equally there it needs lobbying to ensure their rights through dialouge and concensus. But before going to settle this it should keep in mind to select the mediator or lobbyst must should be acceptable to all and he/she should have competent on the selected issue and can place in right time to the right place otherwise the whole thing will be null-and void.

Due to lack of right lobbyst in MDG from the disability side what I felt When the Millennium Development Goals were formulated by the United Nations, the member states were looking for minimum standards of the quality of life of poor people. Unfortunately in these millennium goals, people with disabilities are not mentioned at all. This means discrimination from the development process by the UN and its member states. For me it really is a shame to see these thinking process in world leaders, policymakers and peace builders. Where There is a vicious relationship between poverty and disability there in the MDG none mentioned about this issues.Whereas addressing this should have been one of the main tasks of the Millennium Development Goals. No-one’s life should be turned into a disabled one because of poverty, and no-one should become poor anymore because of disability. The millennium goals should be for all, otherwise a whole group of people will be excluded. disability experts or disabled people should be involved in all the steps, so that, in the Millennium Development Goals, special attention can be given to the mainstreaming of disadvantaged groups. Documents like the millennium goals need be judged or checked as to whether they are disability sensitized or not.

Wednesday, May 10, 2006

Today's session was on new convention on disability and monitoring and how to use this in national contaxt. Kicki,Lars loow and Anuradha three resource persons were today. Anika and anna always was with us. It is nice to learn all this information and one thing is not clear to me how this can be used and who can be supportive if any one wants to start. There is ray of hope to have a network on human rights issue. Then gradually it will develop a big network globally and will bring people very closer and will help to learn and share the experiences for the development of the disabled people.

This blog system also can help a lot to bring closer to all on one issue.